1st International Glycogen Storage Disease Conference | Event

Vitaflo's first Glycogen Storage Disease (GSD) conference was a hybrid event, with over 200 delegates, including 40 in person. The conference shared the results of the international, multi-centred Glyde trial which compared the use of Uncooked Cornstarch with Glycosade.

For those who attended in person, the evening cookery event allowed for a time for networking over a meal. This was followed by a chance to be involved in making GSD friendly recipes with Chefs- Neil and Nicolas.

Links to the recordings of some of the presentations will be added once the Glyde trial has been published.

• Introduction to the conference - Marjorie Dixon, UK
• Background and history of Glycogen Storage Disease (GSD) - Dr Terry Derks, Netherlands
• The Glyde trial – the medical aspects - Dr David Weinstein, USA
• The Glyde trial – the dietary aspects - Abigail Woodward, UK
• The practical aspects of the management of GSD - Dr David Weinstein, USA
• The management of GSD Type 1b in Serbia - Maja Djordjevic Milosevic, Serbia
• Case studies; the use of Glycosade in young children - Foekje de Boer, Netherlands
• Case studies; using Glycosade via a feeding tube - Joanna Gribben, UK
• Expert panel Q’s and A’s